April 3rd - Infusions.

Usually I look forward to my infusions. Infliximab is working great for me and the 6 week wait is certainly worth it.

11 o'clock appointments, a perfect time for me, not too early - I don't do early mornings. A two and half hour infusion, not too long, so should be plenty of time when I get back to walk the dog and do other things.

This time, 2 hours in the waiting room, then I was called in and told to take my infusion seat. A lady who arrived 1 hour later then me to the waiting room was called in at the same time and they set her infusion going within 10 minuets of her arrival. It wasn't for almost 2 hours after she had started her infusion that they started mine! My infusion time should have been before hers and was the exact same infusion, so no reason why mine should have been delayed or even done after hers was.

Oh well infusion done now! Didn't get back until 6pm. Shattered as always. Due to having been sat in a chair for the extra 4 hours, was unable to move my leg and was in agony - not sure if EDS is the reason for that. Something isn't right with my leg - think I need another appointment with the Rheumatologist, however I have been told I am no longer on his list and Swindon are no longer taking on new patients, so I'll have to travel up to Bath - not easy for a non driver, nor someone who finds traveling distances makes them feel very ill!

April 3rd - Grrr once again.

Mum sat us down on Monday for a long chat as I'd ended up crying to her on the phone about Karl.

Karl actually seemed very responsive to the chat and said he'd do more to help and so on. Sounded great.

However, Karl has proved once again he is all speak and no action - he complained earlier that the house was "a tip". I started tidying up and things so he walks away, so much for him saying it's a tip - I was thinking why should I be tidying it up on my own. So half hour of cleaning and I go check up on him where he says he'll do some in an hour, just because he had said it was a tip doesn't mean it had to be done there and then. So 3 hours later and he asks me how to clean the floor - I answered a mop... so he shouted at me for being sarcastic and stormed off like an immature kid. What else was I supposed to answer? Of course use a mop... if he wants he can always use a bloody toothbrush! Not sure why he saw that as sarcastic.

Another hour has passed and has he bothered to help clear up this "tip". No, obviously he is one of these guys who expects house work to be done as it is womans work!

I've swept floor, sorted out next load of washing, cleaned all the glass work on 3 doors, done the washing up from the meal he cooked yesterday (following my hospital infusion). I'm knackered already, I only had my infusion yesterday!!! Grrr Men!